Independent initiative · Information, resources, and a moderated member community
Veterans Acoustic
Neuroma Network

Family and caregiver center

Care for the person.
Plan for the practical.

A guide for spouses, partners, relatives, friends, and chosen family supporting a veteran or active-duty service member with acoustic neuroma.

Before an appointment

Help organize without taking over.

Bring the useful record

  • A short symptom timeline and current questions.
  • Medication and allergy lists.
  • MRI reports, images, audiograms, and prior consultation notes when requested.
  • Referral or authorization information and the appointment address.

Plan access

  • Ask whether the patient wants you in the visit.
  • Request captions, an interpreter, written instructions, or another accommodation in advance.
  • Confirm who will take notes and how follow-up questions should be sent.
  • Ask permission before recording any conversation.

Use the same core questions with each specialist when comparing opinions. The treatment decision workbook can help organize those answers.

Hearing-aware support

Make understanding easier.

  • Ask what works. Hearing needs differ. The person may prefer you on one side, captions, text, or written follow-up.
  • Get their attention first. Face them in good light and keep your mouth visible.
  • Reduce competing sound. Turn down television or music and choose a quieter seat when possible.
  • Speak clearly at a natural pace. Shouting can distort speech. Rephrase instead of repeating the same words again and again.
  • Confirm important details. Put dates, medication directions, addresses, and next steps in writing.
  • Protect dignity. Speak to the person directly and give them time to respond.

Adapted from general communication guidance from the National Institute on Deafness and Other Communication Disorders.

Treatment and recovery

Turn the care team’s instructions into a practical plan.

Observation, radiation, and surgery create different follow-up needs. Ask the treating team for written instructions specific to the patient. Do not substitute a general checklist or another member’s recovery story for those instructions.

Before treatment

  • Confirm transportation, lodging, pharmacy, meals, child or pet care, and time away from work or duty.
  • Decide who will receive updates and who will contact family.
  • Ask what help may be needed at home and for how long.
  • Write down the after-hours and urgent contact numbers.

At discharge and follow-up

  • Review medications, restrictions, follow-up visits, and the return-to-work or duty process.
  • Ask which symptoms require a routine call, a same-day call, or emergency care.
  • Confirm any balance, eye-care, wound-care, driving, or fall precautions that apply.
  • Keep a simple question log for the next appointment.

Explore the symptoms, side effects, and recovery library →

Military life and distance

Plan for duty, travel, and geographic separation.

Active duty and military families

  • Confirm referrals and authorizations through the service member’s care team and TRICARE pathway.
  • Ask the appropriate military point of contact about duty, leave, travel orders, and documentation.
  • Check travel benefits before booking; eligibility and preapproval rules vary.
  • Make a backup plan for PCS, TDY, deployment, child care, and household responsibilities.

Supporting from another location

  • Choose a nearby contact who can help in person if the patient agrees.
  • Join appointments remotely when offered and authorized.
  • Use a shared calendar or document folder with the minimum necessary information.
  • Agree on check-in times across time zones and what should trigger an urgent call.
Travel planning

Eligible veterans and caregivers may be able to claim approved VA healthcare travel. Some non-active-duty TRICARE Prime enrollees may qualify for the Prime Travel Benefit for referred specialty care.

VA travel reimbursement
TRICARE Prime Travel Benefit

Caregiver wellbeing

Your health belongs in the plan.

Caregiving can include uncertainty, disrupted sleep, travel, work changes, and emotional strain. Share tasks early. Keep your own health appointments, meals, rest, movement, and supportive relationships on the calendar. If stress is becoming hard to manage, use a healthcare professional or an eligible counseling service rather than waiting for a crisis.

  • Name one person who can take over a practical task.
  • Schedule short periods when you are off duty.
  • Keep a separate list of your own questions and needs.
  • Use urgent or crisis services when safety is at risk.

Open urgent and crisis support options →

Official support

Find the program that fits your situation.

VETERAN CAREGIVERS

VA Caregiver Support Program

VA’s Program of General Caregiver Support Services offers eligible caregivers training, coaching, group and peer support, and referrals. A Caregiver Support Program team is available at every VA medical center.

Review PGCSS eligibility and support →

Caregiver Support Line: 1-855-260-3274

Program eligibility, services, and availability can change. Confirm current requirements directly with the program.

Printable tool

Caregiver coordination sheet

Use this to divide practical tasks and prepare questions. This page does not save or send what you enter. Avoid Social Security numbers, military IDs, medical record numbers, or detailed medical information.

Confirm before the appointment or procedure

Sources and review

Links checked September 18, 2026. Educational and planning information only; independent clinical review is pending.